Shazzies Creations

From heart to Art… My world on a page

Tag: hope

Today’s not the Today I planned

Today I was meant to be sharing joyful news. Today was meant to be a happy moment of telling the world that Bearded Biker and I would be having our first baby together, but sometimes our Todays dont go the way we plan them and life rewrites our Todays with tears.

So Today, I am telling you Lifes version of my Today, we lost our little New beginning.

Reasons why are not available to us at the moment but since it is now my third miscarraige, the Obgyn has decided blood tests to rule out an Autoimmune Diesease are now nessecary. I find myself in a catch 22 – I in no way want to be diagnosed and live with that prognosis but on the other side of the coin, to have an actual reason behind having to have three precious Dreams become Fairy Tales would bring some closure.

We thankfully have an amazing support system around us and are holding onto our Faith that All things work for our good, even in our moments of not knowing the why’s, we hold fast to that. In this new road we find ourselves travelling we will watch for those we may encounter whose lives will enrich ours and whose lives we can enrich. Be it through the comfort of a shared Journey or the support we can give wherever it is needed.

We go through things in life that we cannot always understand or explain. Things that knock us down and tear us apart, through these events though we grow and find strength we didn’t know we possessed. We gain knowledge and wisdom that further down our journey in life we can use, whether it be in our own lives or in the lives of those brought into our story.

 

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Life’s Pain and Pleasure

And here we stand, after years of fighting we are finally getting closer to the truth. The hard part…. realizing that the truth may not be all you hoped it would be but knowing it is still necessary to know.

My Intellectual Thunderstorm is causing quite a buzz in the medical circles he is involved in at present.  Myriad’s of tests have been lined up and he will be a documented case for future medical students to learn from. He is caught between feeling anxious and scared and at the same time feeling a little famous; finally his differences are being noticed not by glaring and rude kids trying to get a laugh at his expense but rather by adults with gleaming excitement in their eyes.

I’m not quite sure where I am on the scale of emotions at present.  Years of hoping that the truth would lead to a cure or treatment that would make his life better and easier for once, were shattered with the new knowledge that whichever Disorder this turns out to be, it will be a symptomatic treatment process with possible further future hurdles still to come. At the same time though, I am elated at finally having a team of passionate and heartfelt specialists who are no longer going to allow him to fall through the cracks. I know we need the answers so that no matter what the future holds we will be better prepared for it.

I hope that through our struggles, future children like him will not go so easily dismissed. That those who will learn from his medical reports and history will go out to be better Doctors with an eye for the small things and a heart that will listen to those mothers a little more closely.

We have also through all this realized the lack of educational facilities in our country for children with similar problems, this has led to our decision to start the process towards starting a support group, as well as a school, where teens like my Intellectual Thunderstorm can come to learn in an environment that celebrates their differences and understands their struggles. A small home away from home, where they can find their place in life.

For now though…. we taking a day off…. to celebrate our little Pink Whirlwinds Birthday.

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